We are very sad to report that John Mills, former chair of Vasculitis UK, died on Monday 28th August.We are working on a profile of his life and immense contribution …
ANCA trial
The HAVEN trial, headed by Professor David D’Cruz at Guys and St Thomas’, is looking to find out whether a drug used in Lupus can also treat Vasculitis. You may …
EULAR recommendations for ANCA-associated Vasculitis – updated
EULAR Recommendations for ANCA-associated Vasculitis – updated EULAR has published their 2022 update on recommendations for the management of antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV).
Coronavirus (COVID 19)
Information last updated on 28th September 2023 We now have specific web pages with information and advice on Covid-19 and Vasculitis. Guidance for Vasculitis Patients Developed by Vasculitis UK Disclaimer: …
Covid Booster
NHS England are preparing for a Spring 2023 COVID 19 Booster programme, for the same groups that were eligible in Spring 2022: The current intention is that bookings will open around …
John Mills presented with his MBE
John Mill has been presented with his MBE in his home village in Derbyshire. John was recognised in the New Year Honours 2023 with the award of an MBE “For …
John Mills MBE
John Mills, has been awarded an MBE in the New Year’s Honours List. His honour is “Awarded for services to People with Rare Diseases through his role as Chair and …
Report shows “alarming disparities”
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases …
Evusheld update
Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement – saying that there is sufficient evidence that the Covid-19 preventative Evusheld would …
Campaigning for free Covid tests
Join us in calling on the UK Government to continue free tests for people who are eligible for COVID-19 treatments, their families and close contacts. The UK Government is ending …