John Mill has been presented with his MBE in his home village in Derbyshire. John was recognised in the New Year Honours 2023 with the award of an MBE “For …
John Mills MBE
John Mills, has been awarded an MBE in the New Year’s Honours List. His honour is “Awarded for services to People with Rare Diseases through his role as Chair and …
Report shows “alarming disparities”
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases …
Evusheld update
Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement – saying that there is sufficient evidence that the Covid-19 preventative Evusheld would …
Campaigning for free Covid tests
Join us in calling on the UK Government to continue free tests for people who are eligible for COVID-19 treatments, their families and close contacts. The UK Government is ending …
Rituximab and Covid-19
The MedicineMatters website (a resource for healthcare professionals) is offering a 13-minute video of a discussion between Prof David Jayne of Cambridge University and Prof Sebastian E. Sattui of theUniversity …
Melody Study (updated)
UPDATE 6 Feb 2022: We have good news – the invitations to the MELODY study (Mass evaluation of lateral flow immunoassays (at home finger prick antibody tests) for the detection of …
Survey – impact of steroids
Are you being treated with steroids for your rheumatic condition? We need your help to test a new questionnaire about steroid impact on quality of life for people living in …
UKIVAS Vasculitis Webinar
The Second UKIVAS Online Educational Vasculitis Webinar for Medical Professionals Over two days, November 17th and 18th 2021, UKIVAS, the UK & Ireland Vasculitis Study Group, teamed up in partnership with the Royal …
New Research Study
Would you like to help with a research study to better understand why some people with inflammatory conditions affecting the joints or the gut, and treated with immune suppressing medications …