Already vaccinated? Not vaccinated yet? Take the new GRA COVID-19 Vax survey to tell your experience! Open to any adults with rheumatic disease. Takes about 20 minutes to complete
VUK Funds COVID19 Research Study
“Do people with vasculitis mount an effective response to the Covid-19 vaccination and how long does it last?” Vasculitis and its treatment affect the immune system. People with vasculitis may not …
Goodbye EHIC, Hello GHIC
Good news on the insurance front: the EHIC card has been replaced by the GHIC card, and like its predecessor, it is free. (If a GHIC-application website requires a payment, …
Vasculitis UK Helpline
Just a reminder that the Vasculitis U.K. Helpline is open from 9am – 8pm, 7 days a week. Telephone 0300 365 0075 You can contact the Vasculitis UK Helpline for …
Covid-19 vaccinations and vasculitis
Vasculitis UK has produced a brief guide on Covid-19 vaccination and issues for vasculitis patients. (Updated 4 February 2021). UPDATE: Tuesday 9 February 2021 People living in England who are …
Explaining vasculitis to children
Jen Harper, married to GPA patient Charlie, has written a book to help explain vasculitis to children – and is selling it in aid of Vasculitis UK. Holly Helps Out …
First UKIVAS Online Educational Vasculitis Webinar for Medical Professionals
Over 2 days in November, UKIVAS, the UK & Ireland Vasculitis Study Group, teamed up in partnership with the Royal Society of Medicine (RSM) to lay on an educational webinar for 500 medical delegates. …
RAIRDA report
The Rare Autoimmune Rheumatic Disease Alliance (of which Vasculitis UK is a member) has produced a new report “Core NHS services during the pandemic: Latest report from Parliament and what …
Jane’s story: “Coming Out of Shielding”
Jane Edwards has Granulomatosis with Polyangiitis (GPA). Her story “Coming Out of Shielding” has been published on the Rare Disease UK and Genetic Alliance UK website.
Patient Opinion Survey – Rheumatology Services during the COVID19 Pandemic
Do you see a Rheumatologist for your Vasculitis? Has your care been affected by COVID-19? What do you want your future appointments to be like? Please complete this survey & share your …