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Report: Rare Care Matters

In News by John Geddes

Almost one-third of UK rare rheumatic patients face a five-year wait for diagnosis

Today, a new report reveals that some individuals with rare autoimmune rheumatic diseases (RAIRDs) in the UK encounter major barriers in accessing care and treatment. The findings are concerning: nearly one-third of patients had to wait more than five years to get a proper diagnosis, and the average wait time was still a hefty two and a half years.

You can read a summary of the report here.

Or read the full report.