International Rare Disease Day – 29th Feb 2020

In Previous News by John Geddes

February 29th is International Rare Disease Day  

The theme this year is :-

Rare is many
Rare is Strong
Rare is proud 

This is a day to raise awareness of Vasculitis: each type of Vasculitis is extremely rare in its own right.

Here are some ideas of events to get you started:

  • Host a coffee morning, cake stall or afternoon tea
  • Hold an art, photography or craft fair
  • Hold a works lunch time fundraising event 
  • Organise a walk 
  • Plan a sporting event ( football match )
  • Organise a hand and face painting event to #ShowYourRare

We do have leaflets, collection boxes, booklets , balloons,  freebies etc to share. Contact Kelly or Susan ASAP as Rare Disease Day is only 2 weeks away.

Share your event on the VUK website – let Dorothy, Kelly or Susan know what you are planning. 

Share your story with Rare Disease UK

Share your story with Susan or John for the VUK website